Another close one for Joel!

Those of you who are  on my email list and facebook, know that Joel had another serious, long hospitalization in May/June. He began breathing more noisily, fell asleep during home tutoring and then that night complained of pain in his back and acted like he wanted to climb out of his skin. He was intubated by the life flight team at the ER in our town and then transported to Children's by ambulance because it was a very stormy night and the helicopters couldn't fly in it.
The doctors at Children's stood around his bed watching him for hours. The nurses and respiratory people came and left round the clock, hauling big helium tanks in and out. I'd never seen his ICU room so busy, not even after his heart surgeries. They used treatments I'd never seen before. I knew it was bad. Many many Prayers went up! I was ready to let him go if that was God's will, but every now and then I'd find myself crying and would have to leave the room.

His birth family came to visit him. Finally after a few days on the vent, he turned a corner. Then he began pulling things and we knew he was back. Joel was on the vent for 9 days, the longest ever, even after surgeries he was on the vent only 6 days and we thought that was long enough! He was in the hospital for three weeks. The doctor that had stood by him the first night told me later that we'd almost lost him. I knew.

Joel is doing much better, and is now back in school. He has an oxygen concentrator there, with tubing and mask, as well as his nebulizer and meds, to be used as needed. The teacher is intimidated by this but the school nurse is ready to help.

We also have the blessing of night nursing for Joel now, so that he can be  monitored closely as he sleeps. The nurse sits in his room and checks him whenever his pulsoximeter alarms for breath or heart rate. She replaces his Bi-Pap if he tries to remove it. She administers his night and morning meds and charts everything.  At first I was worried about having strangers in Joel's room all night, but now I feel alright because I have become aquainted with these nurses and know that I can sleep without worrying about Joel. We'd had many, many sleepless nights this year with Joel.

I express heartfelt gratitude for the gift of this child, that his life has continued and that he continues to make us smile and chuckle, through it all.

I have to repeat the story of something he said during this last hospitalization. It was after he'd been in big trouble with the nurses...he'd coughed up his vent one day, pulled his NG-J tube three times...and that morning had pulled his Pic-line. He was on their Naughty boy list. Then I heard him talking to himself as he turned the pages in his big dog book, "Joel, you okay?" he asked. And then answered himself, "You Jesus' boy."

I laughed, I cried. From the mouths of babes!