Friday, April 6, 2012

Since October in one post

We enjoyed Thanksgiving and Christmas, praise the Lord! Since Christmas, Joel has had illnesses off and on (including an itchy rash we've tried everything we and the doctors can think of for) and was admitted to Children's by ambulance for breathing problems in March. It turned out to be pneumonia and some congestive heart failure (he has a new stenosis in a different valve, not the artificial one). With antibiotics, IV Lasix, and lots of prayers, he was able to be discharged in four days, a record!

Timmy has a few words that he can say clearly now. He likes to have the iPad with him at all times because he can see the screen up close. Much of the time he looks up at the ceiling instead of at us, we're afraid his vision is worse than they think...he'll wear his glasses at school and for short periods of time at home, but they usually become broken at home because of the younger kids : ( and we notice that he looks over the lenses most of the time. I hope to try the Mira-Flex glasses with him the next time around.

Timmy is a sweet boy and loves people. The challenges we have with him are trying to get him to eat--he's still fed by g-tube, is very thin and has pretty severe oral aversion. Tim won't allow us to brush his teeth and so they're awful. The dental hygienist explained to me today, that because he doesn't eat, the stuff on his teeth isn't knocked off even a little by the food. They tried cleaning his teeth without anesthesia today and thought better of it quickly. This is one strong, wiry little guy! I fear being judged because of Timmy's dental state (they'll only clean them once a year under anesthesia), but I have to say, "unless you've walked a mile in my shoes..." Timmy is a lovable and stubborn little boy!

Ella has new glasses! We went for the Mira-Flex type that are all bendy rubber-- so far so good. She's wearing them for a little while each day. We get some eye contact from Ella especially when singing songs to her (and when she looks in the mirror she babbles) and she still participates in music, likes to flip pages in books and loves food. This is one kid who knows how to make you feel good about making dinner!

Our efforts to keep gluten away from her are going well except she will still sometimes grab something from someone else and stuff in a mouthful before we can get to her. The numbers were much lower at her lab and she's had a major growth spurt. Potty training on a schedule is moving right along, but she doesn't let us know she needs to go as she has no language except the word "no!" and only uses the sign for "more". Ella is affectionate to the people she knows, I love having her come sit beside me like she does, even at the dinner table, she'll move her chair as close as she can to mine, so that our arms are against each other.

We know when Ella doesn't like something--believe me! She still struggles with transitions and going to new places, having new experiences outside of our home. On the days that we have to take her to appointments, we come home physically exhausted from chasing, holding and helping her calm down. We also know when Ella DOES like something, because she shows it with her whole being. She smiles, and laughs, and wiggles and shares her joy. How can you resist a child like that?

Lucy is as cute as can be and as active as they come! She loves to be involved in everything. She loves to draw on everything (another budding artist), wrestle with everyone, take things out of drawers, flush things down toilets, she's very impulsive, etc. etc, you get the picture! The challenge is to keep her busy with a job to do. Little down time for us ;o).


Lucy can speak in short sentences and amazes us daily. She likes to be in charge and has already taken the role of older sister with two of the kids. 


We expect great things from this little girl!


We have a new granddaughter!!! Vivian Ophelia Ramsey was born to our daughter Milly and her husband, Ben, on March 19th, 2012. A beautiful baby girl who will be sister to our grandson Garrett, almost 3. I will get to go visit them this month, the Lord willing. I can't wait!

As far as selling this house and buying or building another, we're still working on that, but we can't seem to get ahead...things keep happening. So much to do, so little time. Love you!

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