Joel's Morning X-ray showed Left lung is collapsed again. Right lung is looking better today. They are stopping the vest treatment and going with a different "IPV" mask for treatments every 2 hours. Interpulmonary Percussive Ventilation. It pushes air into his mouth/lungs with a rhythm much like a "choo-choo" train. Will still use the Bi-PAP mask between treatments. They don't know if there is a mucus plug or just lots of secretions. They want him up in a chair as much as possible. They're not letting him eat to minimize the possibility of throwing up and aspirating. Sips of water every so often. This is SO hard to withhold when your child needs and wants water! He is still being fed by NG tube that extends beyond the stomach.
4:00 PM X-ray showed left lung is still not inflated.
Joel got into the chair twice today, each direction takes about 15 minutes bed to chair or chair to bed. No trips to potty, not enough energy. They are planning to remove the arterial line in his left wrist, as long as his blood pressure remains good. He's still experiencing agitation and anxiety, which they're treating with Ativan but it's slow-acting.
4:00 PM X-ray showed left lung is still not inflated.
Joel got into the chair twice today, each direction takes about 15 minutes bed to chair or chair to bed. No trips to potty, not enough energy. They are planning to remove the arterial line in his left wrist, as long as his blood pressure remains good. He's still experiencing agitation and anxiety, which they're treating with Ativan but it's slow-acting.
The notes above are from Mike who is still with him tonight, we will swap stations again in the morning. It's hard to be away from Joel, or from the three younger kids! At least the younger kids are doing much better this week! Our pediatrician believes that we should keep them all home and away from new illnesses until Joel is home and recovered. I think she's right!!
Heavenly Father, we're thankful for each day and each small gain. And thank you for friends and family who help us in this time of need.
1 comment:
oh sweet Joel. I am so sorry you have to go through all of this. And your parents - so hard for them to watch you each day. And your siblings - it's hard for them with you gone too. We will continue to pray.
Bella has IPV treatments three times a day. Watching poor Joel is reminding me of so much that Bella went through - and how hard it is on the parents and the other kids at home. Hugs for y'all. we will continue to pray.
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