The IVP treatments and throat suctioning seem to be helping, we are hopeful!
They did an upright chest X-ray today, thinking that if he sat in a chair, if there was fluid in his lungs it would shift to the bottom and they could somehow suction it out. Well, the X-ray didn't confirm that it was fluid.
Joel sat in a chair from about 8:15 this morning until 3:15 this afternoon (took a nap there, too)! Finally asked for bed, made the trek back with much support and has been resting fairly comfortably, watching movies.
He isn't allowed to eat until he can safely be off the Bi-PAP and the IVP treatments. He's on a different version of Pediasure, now round the clock, but the nurse explained to me that since it doesn't go into his stomach, he still feels hungry...which is why he keeps asking for "dinner" : (. At least he could have water and clear pop today!!
We have a hard time understanding what he's saying in the mask so I asked the Child Life director to make him some pictures to choose from. She did wonderfully, making two laminated pages of pictures so that he could point at what he wants. Joel actually pointed a few times today, usually at the cottage cheese, which we shouldn't have put on there (what were we thinking?! ) Previously his hands have been "broken" and useless to him, because of the various IVs and lines in them, so this is progress!
I agree with what the nurse said about him tonight, that he "looks" like a completely different boy than what his X-Ray says. He's pretty amazing.
Thank you to his school teacher and class for the Cars Blanket and poster with pictures!! He loves them! Papa came up tonight and brought Joel's home monitor strips and the gifts from his teacher, including his Valentines. We had bedtime prayer together. A quick visit, but we enjoyed it.
Goodnight Lightning McQueen.
Goodnight Bears.
Goodnight Papa.
Goodnight little Toy Story guys.
Goodnight Friends.
Goodnight Moon.
1 comment:
Such a sweet little guy! You guys are in my prayers!Hope he gets better soon.
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