Joel is off the vent!! He's on the canula for oxygen and still has the NG but can drink and is now on a clear liquid diet. He sat up in a chair for a little while this morning. He's coughing a lot, is very shaky and tonight was extremely agitated. The nurse said he must've become addicted to one of the drugs he was on (Versed?) and is going through withdrawals. This is another really tough thing to have to watch our poor boy endure! He's also on steroids to help reduce throat swelling and steroids always make him act strange. Joel had me massage his left foot for a long time (not the right one because the drain tube just came out of that upper leg) and sing "You Know Better Than I" from "Joseph King of Dreams" to help him fall asleep...and he was also given some Ativan (sp?).
So, aside from the congestion and the addiction, he's doing well! What a roller coaster this is, but we're making gains, which I'm so grateful for.
He's awake again, goodnight for now.
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so sorry - I hated the withdraws. We had to take it slower. I was so grateful for methadone. Sweet Joel. I can't imagine going through it with a big kid. It was hard enough with a baby. Sweet man.
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